Collaborating with the community to identify what matters most.

Ageing Well with Sickle Cell is a patient led project that aims to identify the unmet needs preventing people over the age of 35 living with sickle cell disorder from “ageing well” (improving their quality of life).

Latest news

Project launch event

Sickle warriors, loved ones and clinicians came together for the launch of the Ageing Well with Sickle Cell project on Wednesday 5th March 2025. Click here to read more …

Upcoming Focus Group!!

Join us for the first Ageing Well with Sickle Cell focus group .

Our funders and partners