Collaborating with the community to identify what matters most.
Ageing Well with Sickle Cell is a patient led project that aims to identify the unmet needs preventing people over the age of 35 living with sickle cell disorder from “ageing well” (improving their quality of life).
Latest news
Focus Group 1 official summary report
Read the official summary report from the Sickle Cell Society and see what our attendees had to say about 3 themes: Care with compassion, Mental Well being and Financial Stability. Click here to read more...
Focus Group 3 official summary report
The final focus group hosted by the sickle cell society took place on 21st July.
Click here to read more about what attendees felt positively contributed to Better health & Wellbeing...
Project Progress
We have been working hard to ensure that the Ageing Well with Sickle Cell project has remained on track to accomplish all of its milestones along the two year journey.
Click here to review the our achievements to date.
Faith, Resilience and Confidence
Celine Tulfour sat with the Ageing Well team to talk about her journey with sickle cell on the first Ageing Well with Sickle Cell Podcast. Click here to read more …
Ageing Gracefully
Click here to view the latest patient story from Ade Sawyerr on how he has aged gracefully whilst living with sickle cell.
Ageing Well Stories
Click here to view some of our patients share their stories of ageing well with sickle cell. If you are a King’s College Hospital patient, living with sickle cell disorder, over the age of 35 and also want to share your story contact us today.
Focus Group 2 official summary report
See what attendees had to say about the following themes: Work and Worth and Preventing Accelerated Ageing.
Click here to read more...
Ageing Well Summary Posters
We are excited to share 4 posters created during the project based on discussions had with patients and clinicians.
Click here to view these posters on Screening for Diabetes with Sickle cell, Self advocacy, Keeping mentally well and Preparing for pregnancy.
A Tribute to Liz…
The Ageing Well with Sickle Cell team would like to honour the memory of Elizabeth Blankson-Hemans. This page is dedicated to remembering her vision for this project and recognising her commitment and invaluable contribution.
Project launch event
Sickle warriors, loved ones and clinicians came together for the launch of the Ageing Well with Sickle Cell project on Wednesday 5th March 2025. Click here to read more …
Focus Group 1
Hosted by the Sickle Cell Society the first focus group took place on Thursday 11th September 2025. Click here to read more...
From the patient’s perspective
Click here to view the barriers identified by patients during the focus groups we held throughout the project.
Our funders and partners
