Collaborating with the community to identify what matters most.

Ageing Well with Sickle Cell is a patient led project that aims to identify the unmet needs preventing people over the age of 35 living with sickle cell disorder from “ageing well” (improving their quality of life).

Latest news

Focus Group 1 official summary report

Read the official summary report from the Sickle Cell Society and see what our attendees had to say about 3 themes: Care with compassion, Mental Well being and Financial Stability. Click here to read more...

Faith, Resilience and Confidence

Celine Tulfour sat with the Ageing Well team to talk about her journey with sickle cell on the first Ageing Well with Sickle Cell Podcast. Click here to read more …

Ageing Well Stories

Click here to view some of our patients share their stories of ageing well with sickle cell. If you are a King’s College Hospital patient, living with sickle cell disorder, over the age of 35 and also want to share your story contact us today.

Focus Group 2 official summary report

Attendees had to say about the following themes: Work and Worth and Preventing Accelerated Ageing. Click here to read more...

A Tribute to Liz…

The Ageing Well with Sickle Cell team would like to honour the memory of Elizabeth Blankson-Hemans. This page is dedicated to remembering her vision for this project and recognising her commitment and invaluable contribution.

Project launch event

Sickle warriors, loved ones and clinicians came together for the launch of the Ageing Well with Sickle Cell project on Wednesday 5th March 2025. Click here to read more …

Focus Group 1

Hosted by the Sickle Cell Society the first focus group took place on Thursday 11th September 2025. Click here to read more...

Our funders and partners